Life Video

By Katy Gill


A young chemotherapy patient performed a hilarious eulogy during a pretend funeral for her immune system.

Hallie Bea Barnard has been battling Diamond-Blackfan Anaemia (DBA), a condition where her bone marrow doesn’t produce enough red blood cells, since she was 15 months old.

While lying in a bed at Cook Children’s Hospital in Fort Worth, Texas, USA, on October 23, the optimistic 10-year-old bids farewell to her old immune system while celebrating her impending transplant.

The youngster was bed-bound due to being at high risk of picking up infections after undergoing a transplant operation.

Hallie’s mum, Elise, said: “In order for her body to accept the donor’s bone marrow, Hallie must undergo chemotherapy.

“Her bone marrow and immune system will be wiped away and the donor’s bone marrow can grow.

“Hallie is alive today because of blood transfusions and steroids, but the only cure for DBA is a bone marrow transplant.

“It is super rare to find your match, so we waited nine years for Hallie’s.

“There is a one per cent chance in the whole world that you will find your DNA match and less than three per cent of Americans are on the National Bone Marrow Registry.”

Hallie’s Heroes is a charity set up by the young girl after four fellow patients died in the same month from DBA.

The charity organises bone marrow drives and fundraisers in order to bring light to the importance of the bone marrow registry and the need for more research into DBA.

After organising a drive for police officers and fire fighters to get swabbed, two police officer’s donations went on to save other sufferers’ lives.

It even resulted in the 10-year-old being sworn in as a Junior Fort Worth Police Officer and becoming best friends with Brandi, a police officer.

Brandi, 36, who is featured in Hallie’s eulogy video can be seen hysterically laughing whilst the witty youngster shares her thanks to her old immune system.

Brandi said: “I met Hallie on the night that she became a junior police officer.

“Her and I instantly clicked, and I feel so lucky to have met both her and her mom.

“It is hard to put into words the magnetism of Hallie’s spirit, you really only get glimpses of it on video.

“She has the quick wit, intelligence and mannerisms of an old soul and she is so much fun to be around.

“She is so thankful to everyone around her, even while getting her treatment and at her sickest, she was still thanking everyone.

“I really have fallen in love with her and her family, and we all tell people I’m her aunt.”

Hallie also shared a video of her dancing after her haemoglobin – the red protein responsible for transporting oxygen in the blood – hit an all-time high, thus proving the donation was working.

In the footage, she can be heard repeatedly asking her mum: “Is this what it feels like to be healthy?”

Elise said: “DBA doesn’t affect a high enough number of children, meaning there is zero research money allotted to researchers/scientists.

“These are terrible statistics, made worse that there are 14,000 people on the registry just waiting for their match and many don’t have time.

“Parents, family and friends have to raise funds to give for studies and research.”