By Becca Husselbee
A young girl who has never been out of hospital has finally been able to go home for the first time after FOUR years!
Little Maham Naz has a rare form of muscular dystrophy meaning she spent the first four years of her life in and out of intensive care.
The youngster needs help with all daily activities, requiring 24-hour care, and takes her medication and food via a tube but with the help of carers, she has been able to return home to her family.
Mum Nomia Naz, 40, said: “The best part about having her home is that we can be a family again.
“We have never been able to do the things we did with our other two girls but now we can all be together.
“When she was really ill we thought there was no light at the end of the tunnel but she has kept us going.”
Maham showed signs of muscular weakness as a baby and was diagnosed with a very rare form of Muscular Dystrophy, meaning she struggled to move and swallow food.
Nomia said: “She would choke when feeding and I knew straight away she wouldn’t be a normal child.
“Eventually doctors told us she would have to be fed through a tube as it was too dangerous for her to eat normally.
“It was a big shock when she was diagnosed but it made me realise what other families with disabled children are going through, I know how it feels now.”
Maham’s condition means she is susceptible to viruses and would spend months at a time in intensive care at Birmingham’s Children Hospital, keeping her away from her family home in Small Heath, Birmingham.
The form of Muscular dystrophy that Maham has is so rare that even doctors were unaware of it until they consulted specialists.
Nomia said: “It took a while for the doctors to understand, they said she was unique.
“I think they learned a lot from her.”
Her parents would visit every day with Maham’s sisters Alina, 11, and Aliza, 9, spending hours by her bedside but hoped one day they could bring their little girl home.
Nomia said: “It’s so surreal that she is finally home.
“We never dreamed this would be possible.
“She’s coped so well and I’m so proud of her.
“Her sisters love to play with her, read her stories and paint her nails, she loves it.”
Maham has now been back at her newly adapted family home for two months with the help of carers, who spend 22 hours a day attending to all her needs.
Doorways in the house have been widened to allow wheelchair access as well as a downstairs bedroom for the youngster.
Nomia said: “She is interacting so much and is more vocal now she is home and around her sisters.
“Our family work around her and having her home is more important than anything.”