Life Video

BY NICOLAS FERNANDES


A girl battling an ultra-rare condition that causes ‘Einstein hair’ is defying cruel comments as strangers tell her ‘electrocuted’ locks look beautiful.

Evelyn Cubbedge, of Lawtey, Florida, USA, has Uncombable Hair Syndrome, a gene mutation that affects less than 100 people worldwide, causing disorderly strands that cannot be combed flat.

The five-years-old’s straw-like blonde locks naturally stand up and never grow long enough for her to need a haircut. 

PIC BY NICOLE CUBBEDGE / CATERS NEWS

Suffering from the same condition that Albert Einstein was believed to have, strangers say that the girl looks like the 19th century scientist and often ask if she was electrocuted.

While her mum Nicole, 34, gets frustrated with the rude comments, she feels like they are overshadowed by the many compliments her daughter receives.

The mother tries putting Evelyn’s hair in a pony tail with hairspray, but even that doesn’t keep it from sticking up for long. 

Nicole, a cake decorator, said: “People are always touching her hair and telling her how beautiful it is. 

“Sometimes people make ignorant comments and it’s just like, ‘why would you say that?’

“All of the wonderful compliments she gets outweigh the dumb comments.

PIC BY NICOLE CUBBEDGE / CATERS NEWS

“I usually try to put it into a little ponytail to keep the bangs out of her face, but it’s not easy because of how short it is.   

“Everyone is always fascinated by the color and about how soft it is.

“She’s never had a real haircut. Sometimes I’ll cut what I can to make her feel better, but it’s usually just one or two long pieces.”

Evelyn understands that her hair is different than everyone else’s, so for the most part it doesn’t bother her.

PIC BY NICOLE CUBBEDGE / CATERS NEWS

Once in a while, she gets upset that she isn’t able to have a longer hairstyle like other girls in her school.

Nicole said: “She’s starting to realize the difference between her hair and everyone else’s, but it doesn’t phase her much.

“Sometimes she sees the other girls’ hairstyles and wishes that hers could look the same.”

Evelyn did not have any hair when she was born and her straw-like strands didn’t start growing in until two months before her first birthday.

Her mum said: “She was bald as a baby and her hair didn’t even start growing until she was about ten months old.

PIC BY NICOLE CUBBEDGE / CATERS NEWS

“From the first day that it grew in, it just stuck straight up and she didn’t have a full head of hair until she was two years old.”

For the time being, Evelyn’s family is going to keep her hair as is.

Nicole said: “It’s what makes her unique. We’re not going to do anything about it unless it bothers her more as she gets older.”