By Mollie Mansfield
A mother-of-two who had her nose eaten by a rare autoimmune disease has opened up about life since having her new magnetic nose fitted.
Jayne Hardman, 48, had her nose removed in November last year after developing Wegener’s granulomatosis – a rare disease that rotted the flesh on her nose – after being head-butted by her dog.
The family dog, Cece, a 14-stone Neapolitan mastiff, knocked into Jayne’s face in January 2014 and caused her face to swell.
Later that year both nostrils collapsed and in fear the autoimmune disease would destroy more facial features, the doctors had no other choice to amputate her nose.
Jayne was left with a hole in her skull but in January this year, after four prototype prosthetics, Jayne was given her magnetic nose.
Despite spending three years being unable to leave the house in fear of looking ‘too weird’, Jayne has found a new lease of life in her prosthetic.
Jayne, from Redditch, Worcestershire, said: “For three and a half years my nose was disappearing and towards the end of last year the bone had completely disappeared.
“After having my nose amputated in November last year, I finally have a perfect prosthetic nose and have the confidence to leave my house whenever I feel like it.
“I trialled four other noses before having the one I have now, I couldn’t be happier with it, it’s done so well and people can never tell that it’s not real.
“So although I’ve lost my real nose, I feel like I am now complete. Something weirdly clicked into place when I clicked this magnetic nose on.”
After being head butted by her dog in March 2012, Jayne’s nose continued to pour with blood, but the doctor’s insisted that it was not broken and just needed to be iced.
However after her nose continued to swell, Jayne returned to the doctors and was eventually diagnosed with the rare autoimmune disease in June 2014.
She said: “I knew from the moment that CeCe hit my head that something wasn’t right with my nose, and from that day on it never went back to normal.
“The disease was always there but it was lying dormant, it was CeCe that saved me really – if the collision hadn’t have happened I could have died.
“If the disease had remained unnoticed, my immune system would still be working to kill off all of my cells and slowly destroy me.
“Over the years after my diagnosis, my nose started to dissolve, in the end amputation was the only sensible thing to do.
“I went through several rounds of chemotherapy in 2014 to stop my immune system from killing all of my cells, but even after that they couldn’t save my nose.
“The day I found out my nose was being removed was the worst day of my life, but I knew it had to be done to make progress.
“I had already been wearing glue-on prosthetics over my collapsed nose, so I just had to believe the doctor that the new prosthetic after my nose was removed would be even better.”
So once her nose was removed, the NHS started to create the perfect prosthetic for Jayne and took several moulds of the cavity.
However to ensure that her nose would be easily detachable, so that she could still clean out the hole in her face, doctors had to drill metal screws into her skull.
She said: “The pain of the metal screws being tightened into my skull was a pain I cannot describe, it was just excruciating.
“But I knew it was the only way to make my magnetic nose work and I’m so glad now that I sat through it.
“Before my magnetic nose I had glue-on prosthetics, but they never lasted long.
“I’ve ripped them, the dogs have chewed them and they haven’t always fit right, but this prosthetic is perfect.
“It’s very easy to take on and off so that I can steam the hole every morning to make sure any mucus is removed.
“And considering I hated my original nose and would’ve had a nose job to fix it anyway, my confidence is now higher than ever!”
But despite not being able to hear, taste or smell when her nose was removed, last week she regained all her senses again.
Jayne said: “When my nose was removed I couldn’t hear without hearing aids, and I couldn’t taste or smell anything because my nasal receptors were damaged.
“But as of last week my hearing has fully returned, as well as my sense of smell and taste, so life is slowly but surely going back to normal.
“So now I am on a concoction of steroids and antibiotics to help keep illness at bay and help with my recovery.
“Now I am focusing on seeing the fun side of what’s happened to me, and even when I’ve sneezed it off or it’s flown across the room at my son, we just see the funny side.
“I still feel extremely lucky to be alive, so I want to make sure that no one else goes through this and if I can save one person from losing my nose, it will all be worth it.”
Jayne now works with health charity Vasculitis UK, for more information please visit: http://www.vasculitis.org.uk/