By Mollie Mansfield
A pair of devoted parents are set to fork out £15K on adventures for their miracle tot.
Sebastian Pitts, three, from Manchester, wasn’t expected to live after being diagnosed with Leigh Syndrome – a neurological disorder that affects mental and physical abilities – at just seven-weeks-old.
His parents, Stephen, 32, and Yvette, 30, were warned that their son only had 12 months to live but despite this, he is continuing to defy doctors every day.
And despite being optimistic, his parents weren’t taking any risks and decided to write a list of adventures for Sebastian to experience.
The family have spent £5k so far on Sebastian’s bucket list and have travelled all over the world to complete it.
The list included a trips to Disney World Florida, F1 races, New York to watch a Rangers game and Wembley Stadium to watch an England football match.
Stephen, a general manager, said: “The day I found out Yvette was pregnant was the best day of my life, we had always wanted children before we were 30 and it was finally going to happen.
“Yvette’s pregnancy was problem-free as was her birth, life was bliss for the first seven weeks until we realised our baby boy wasn’t developing properly.
“Sebastian’s cousin, who was the same age, had full head control, he was smiling, laughing, being active and generally just seemed more alive.
“Whereas Sebastian wouldn’t smile or make any noise, he just seemed to always be sleeping.
“However, we thought that maybe he just wasn’t as active or developed as his relative yet.
“But then later that day we were back home and Sebastian started vomiting really badly and wasn’t stopping, so we took him to the doctors.
“From there our lives went from perfect to a complete disaster.
“Once Sebastian was diagnosed, we did our best to stay positive and from there we wrote down a list of adventures for him.
“So far we’ve spent £5k and we’ve done this by using money raised by our family and friends.
“He’s so happy when he sees new things and we just want to ensure if his life does end up being short, that he sees enough for a lifetime.”
The Pitts family decided to put together the list just after Sebastian’s first birthday.
It helped the couple to focus on something else rather than their life changing news.
Yvette, Stephen and a small group of their friends decided that it would be best for them to compile a ‘bucket list’ of fun adventures for Sebastian to complete.
He added: “It was only a small list of just four things on it at first, but as soon as we saw him getting stronger it started to expand.
“The list included everything that we would have wanted to do with him if he was able bodied.
“My wife and I are both massive sports fans, so there was no way sports weren’t going to be added to the list!
“Yvette loves F1, so we knew we had to take Sebastian to a F1 race, and I love football, so both a Man United game and an England game were added on.
“And as a family we all love ice-hockey, so we thought we would take Sebastian over to Ireland to see our favourite ice-hockey team Manchester Storm play.
“That way we could take him on a plane too, which was another ‘normal’ thing we wanted him to do.
“He loves sports, although he can’t play them he loves to watch them. When we watch ice hockey or football he will sit there and watch the whole thing totally undisturbed.
“When we went to watch Manchester Storm in Ireland they skated Sebastian around the ice rink in his chair in a lap of honour.
“It was so overwhelming, Yvette and I were both in tears – it was amazing.
“But sports aside we also added things onto the list that every child would dream of doing.
“We visited Disneyland Paris in October 2016, and I don’t think we truly realised Sebastian’s love for the characters until then.
“Now if we turn the Disney channel off he cries.
“He was the happiest that I’ve ever seen him when we were at Disneyland Paris.
“He can’t talk or walk, but when it comes to Disney he shows so much emotion.
“Seeing his face at the parades and watching him get excited was priceless.
“So we had to add a trip to Disney World in Florida to the bucket list, to let him experience that feeling again, on an even bigger scale.
“We don’t know how long Sebastian’s got left but we are just making sure we fit as many adventures in as possible, while we still can!
“Hopefully he will keep on fighting so we can keep adding to the list and making more memories with him.”
The Pitts family’s bucket list includes all of these adventures:
VISITING DISNEYLAND PARIS (COMPLETED) – £2000
GOING TO WATCH A F1 RACE (COMPLETED) – £1500
TRAVELLING BY PLANE (COMPLETED) – £500
GOING TO WATCH A MANCHESTER UNITED GAME (COMPLETED) – £150
GOING TO SEE ENGLAND PLAY AT WEMBLEY STADIUM (COMPLETED) – £200
BUYING A MANCHESTER STORM SEASON TICKET (COMPLETED) – £600
VISITING EVERY AWAY RINK IN THE EIHL LEAGUE AND COLLECTING A PUC FROM EACH ONE – £750
GOING TO NEW YORK TO WATCH A RANGERS GAME – £3000
GOING TO DISNEY WORLD IN FLORIDA – £6000